HIV / AIDS Prevention & Control for Minorities
The HIV/AIDS section of our web site provides a wide spectrum of information concerning HIV prevention, early detection and control.
“Mainstream America” should care more about the AIDS epidemic in multicultural populations because:
- An increased societal investment on HIV prevention would be a very sound investment because the cost of treating HIV and AIDS is very high, and all taxpayers pay those costs, directly or indirectly;
- The illnesses of some people with AIDS, combined with the general treatment and treatment monitoring needs often interfere with productivity in the workplace, whose composition is increasingly made up of multicultural populations;
- More organizations and individuals who are financially able to do so will hopefully give more support to HIV prevention efforts; soon recognize the great loss to society from silently (sort of) permitting the AIDS epidemic to continue destroying so many lives; and
- Treatment with medications called protease inhibitors, and the use of cocktails (multiple drug therapy) has changed AIDS from primarily being a fatal disease, to a chronic disease (that people can live with for a long time).
NYS Statewide Research by Health Power’s President
In 1992 and 1993, Dr. Norma Goodwin, President of Health Power, conducted an 18-month statewide strategy development action project on HIV prevention in African-Americans for the AIDS Institute of the New York State Department of Health. In addition to the AIDS Institute’s publication and wide distribution of the Final Report, it was also distributed for several years as a CDC resource of the AIDS Clearinghouse.
Key research activities were:
- a comprehensive literature review,
- conduct of 48 focus groups,
- 92 in-depth interviews,
- an all-day Grassroots workshop
- an all-day Leaders and Experts workshop,
- analysis of selected high profile print and broadcast commercials targeting African-Americans to identify common elements.
Focus groups were conducted with the following African-American groups:
- gay and bisexual men and adolescents
- heterosexual men
- prison inmates (current and former)
- substance users
- partners of substance users
- women of childbearing age, including a Caribbean group
- faith based leaders
- other leaders and experts
In addition, focus groups were conducted with representatives of community based organizations.
HIV prevention strategies were developed for:
- the African-American groups listed above;
- African-American faith leaders and communities;
- Other African-American leaders;
- HIV counseling and testing;
- Community organizations; and
- Public communication.
Key Project Findings:
Dr. Goodwin considers many of the findings and recommendations of her research still valid, and not adequately pursued, today. They were:
- Although African-Americans then knew the two most common ways HIV is transmitted – through participation in unprotected sex, and sharing of needles and other materials used in intravenous (IV) drug use – their knowledge of other modes of transmission was limited.
- While many African-Americans associated having AIDS with death and with being stigmatized, relatively few were aware of the wide range of physical, psychological, social and economic consequences often encountered by people with AIDS.
- Even though African-Americans were aware that, theoretically, they could develop AIDS as a result of prior or current practices – and many had friends, relatives or acquaintances who had HIV infection or had died of AIDS – they tended to disassociate this knowledge from a feeling of personal vulnerability.
- Although most African-Americans who were economically disadvantaged were aware that they might be engaging in practices which put them at risk of contracting HIV/AIDS, feelings of hopelessness and low self-esteem prevented them from acting in their own best interest. In other word, there was a strong link between poverty and attitudes which contributed to the disproportionate prevalence of AIDS in African-Americans.
- Many African-Americans considered institutional racism to be a major contributing factor to the disproportionately high rate of HIV/AIDS in the African-American population; some also considered AIDS a form of genocide.
- Although many African-Americans stated that they would want to know if they had HIV infection, most had not received HIV counseling and testing because, among other reasons, they distrusted government and feared they would lose family, social and community relationships if they were found to be infected and their HIV status became known.
- Most African-Americans felt that Black religious organizations could, and must, play a much greater role in preventing AIDS in their communities.
- Many African-Americans felt that African-American leaders and organizations should be much more active in trying to prevent AIDS in their communities.
- 12 Barriers to HIV/AIDS Prevention and Control in Racial/Ethnic Populations
- Group-specific Barriers to HIV/AIDS Prevention & Control for:
– Heterosexual Men
Following the group-specific information provided for the above groups, Health Power provides recommendations on what communities and community groups, and faith leaders should do.
The recommendations on the web site refer to communities of color rather than just African-Americans because there is a significant correlation between socio-economic status or poverty, and the incidence of HIV/AIDS, irrespective of race and ethnicity.
This does not mean, however, that the barriers identified by Dr. Goodwin and Healrh Power apply to all people/communities of color. The latter observation is made because of the importance of avoiding stereotypes regarding African-Americans, Hispanics and other groups and sub-groups that are disproportionately affected by HIV/AIDS, given the multiple harmful effects of stereotyping.
Many improvements have occurred regarding HIV/AIDS in the 15 years since Dr. Goodwin conducted AIDS and African-Americans: It’s Time for Action. Noteworthy among these improvements has been the availability today of rapid testing methods, effective combination treatment, and capacity building within many organizations that serve African-American, Hispanic and other multicultural populations and communities.
Unfortunately, however, the lower overall socioeconomic status of African-Americans as compared to the general population means that many African-Americans with HIV/AIDS have less access to high quality care and follow-up.
What Health Power Will Do to Help Reverse the HIV/AIDS Health Disparities in African Americans and Other People of Color
In the view of Dr. Goodwin, much too little action has been taken that is consistent with many recommendations resulting from her research. The increasing disparity regarding African-Americans and HIV/AIDS convinces her that there is a continued need for the adoption and implementation of research based strategies. Further, because of the continuum related to the various aspects of HIV/AIDS, an increased focus is needed on prevention, early detection and control.
Because Health Power considers such action still very much needed, we will periodically add more detailed findings from the AIDS and African-Americans: It’s Time for Action research to the HIV/AIDS Section of our web site. In that way, we hope to share useful information with others who want to help make a difference in eliminating the excessive burden of HIV/AIDS on African-Americans. Specifically, they will be able to select just one strategy from many, and then recruit others to join with them in actively addressing that strategy in order to help make a difference.
Soundness of This Research Project as a Basic Model for Replication
The soundness of the AIDS and African-Americans: It’s Time for Action Project is evident from a number of factors including:
- Credibility of its sponsor – the New York State AIDS Institute;
- Comprehensiveness of the Project design and effectiveness of its implementation;
- Project focus on gathering information and advice directly from those at risk and/or affected by the HIV/AIDS epidemic.
- Expertise and credibility of Project Director, staff and consultants*;
- Expertise and credibility of the more than 400 participating organizational representatives and other individuals; and
- Recognition of the project’s significance as reflected by wide distribution of the Final Report over a period of several years by the New York State AIDS Institute and CDC.
Dr. Goodwin has a limited number of copies of AIDS and African-Americans: It’s Time for Action that can be obtained for the cost of postage and handling, paid in advance.
* A list of the more than 400 organizations and individuals who participated in this project is provided in the Final Report.
A Special Need 15 Years Later from Health Power’s Perspective
Since health disparities regarding HIV/AIDS in African-Americans have continued to increase over the past 15 years, a comprehensive qualitative research study which has a similar design and approach to AIDS and African-Americans: It’s Time for Action is greatly needed today:
- to identify those recommended organizational and community strategies that have been actively pursued, nationally, to what extent, and what the outcomes have been;
- to determine changes in HIV/AIDS related the knowledge, attitudes and practices of the various population sub-groups that participated in this research project (and ideally, a number of additional population sub-groups); and
- to identify key strategies needed today to reverse the damaging and increasing effect of HIV/AIDS on African-Americans because: It‘s Time for More Intensive Action.
Health Power considers it very important that a repeat research project, based on the AIDS and African-Americans: It’s Time for Action model, be conducted after updated modifications. The wide array of recommended strategies from the project, although apparently not adequately focused on in our opinion, make a strong case for comparing the findings from thatbaseline study with where we are today – both as health professionals and at-risk communities and populations.